Alzheimer Scotland Dementia Advisors

Wednesday, February 19, 2020

Adapting to living with dementia can be a huge challenge, not only for a person living with dementia but also for their family and friends. Our Dementia Advisors help families navigate the maze of health and social care services and to maintain community connections so that they can live well with dementia and be better prepared for the future. They also help people negotiate the distressing and often terrifying initial period following diagnosis, giving people with dementia confidence and security when they most needed it. While dementia is a fatal disease, Dementia Advisors support people to live the best lives they can, for as long as possible, in the way that suits them best.

The support that Alzheimer Scotland’s Dementia Advisors offer to people with dementia is person-centred and designed to meet the specific needs of the individual. The first interaction can often come before diagnosis, when people are worried about their memory and are looking for some advice, and, on many occasions, the relationship will continue the full way through a dementia diagnosis.

Marion, who cared for her husband said:

‘My Dementia Advisor has been my ‘go to’ person for everything dementia related for the past 9 years. She was my library of knowledge for local resources and support groups and was also my comforter and confidante. She was the only person in those stressful years who I knew would understand what I was going through and would do her best to help, without making me feel useless or inadequate.

From the early stages of my husband’s vascular dementia journey, my Dementia Advisor was there with information, activity suggestions, coffee and a hug, or whatever I needed. She organised dementia cafés, singing memories, cinema afternoons and carer groups, providing vital peer support for me and my fellow carers, and a stimulation for our loved ones living with dementia.

As the illness progressed, she was still there, in person or by phone. She also signposted me to help elsewhere, like a much-needed counsellor, when caring became very difficult. My Dementia Advisor has been my ‘dementia angel’, through the later stages, then care admission and to the end of my husband’s life a few months ago’

Supporting carers and families is a vital part of the Dementia Advisor role. Dementia doesn’t just affect the person with the illness – it affects the people most involved in their day-to-day care and support. Dementia Advisors are here to make sure that the carers are cared for and that they feel just as supported as the person living with dementia. To find out more about our Dementia Advisors, please visit our website www.alzscot.org

Alzheimer Scotland’s Dementia Advisors are funded by donations. For more information about how you can get involved with fundraising for Alzheimer Scotland’s vital services, please contact Hannah – hlivesey-evans@alzscot.org

Worried about dementia?

Our 24 hour freephone dementia helpline provides information, signposting and emotional support to people with the illness, their families, friends and professionals.

Call 0808 808 3000 or email helpline@alzscot.org

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